Celiac · IC

Flares

Handling our flares is just what we do.  It comes with the territory, it can leave you feeling alone and segregated from the world. You know me, and I’m all about Chronic Illness education.  How can we improve one’s mind and soul through certain gloom and distress?  Many of the chronic diseases have sister symptoms that overlap with other illness’.  For example, My BF has fibromyalgia and we share similar eating challenges, physical limitations, and pain woes.  It’s no surprise that each of us handle pain and daily suffering differently.  It’s really easy to slip up and fall into an anger pattern when you hurt all the time, day in and day out, with no relief.

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An example for you on the pain associated with IC.   Women, if I asked you how were the Braxton Hicks contractions when you were in labor with your blessing, you might tell me they were nothing compared to full out labor.  I’d agree with you! But, my bladder is that fickle, uncooperative, and unrepentant source of pain. I can go for days with that type of pain level and worse with no relief, along with other body aches, pelvic pain, intestinal drama, and an excessive amount of trips to the loo.   I know you are gonna say, what about pain medicine?  Can’t you just take something?  Well, everyone is different and I just can’t live on pain medication daily. 1) My liver won’t allow it 2) Pain medicine isn’t effective- if you take them all the time. You constantly need a higher dose to compete.  So yep, sometimes you have to just grin and bear it. You must find a way to get comfortable and try to distract or manage a way through it.

These are the top things that most people do when flaring! Flare is our spoonie word for when your body has cast its lot for revolt and you have no choice but to give in and let it have its way.

  1. Medicine and Sleep with heating pad.
  2. Watch movie/TV show marathon with heating pad. (The new Netflix and chill)
  3.  Both 1 & 2 while cuddling with your favorite furry friend and the heating pad.

I’d like to throw out some ideas if you can manage it with time and money constraints to find and enjoy some other outlet.  It should be something that you enjoy doing that will challenge your mind on your good days and possibly your bad days. Our goal is to fight depression and guilt days!

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  • Write a book or begin blogging. I picked up writing fiction in addition to blogging.  Granted I’ve only written one book and it’s still in the editing phase.  I have no timeline, no rush, no panic.  It’s all as I can get it done!  I do intend to see it through all the way to publishing.
  • Take a class. I have a friend that takes classes.  Yep, she goes to college for fun.  Only she never leaves her home. There are websites  online with classes from a few years ago and you can download and take them in your easy chair,  at your own leisure to broaden your mind.
  • Learn to crochet,knit, or sew. There are hand projects of all sorts to do when you have down time sitting.  Start now and you could crochet all your Christmas gifts!

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  • Read or Audio.   I hope you have a public library you can utilize, ours is small but carries relatively new fiction and has a variety of books on Audio. Sometimes fiction is grand at distraction from pain.
  • Games. Shocker that I’d go there right.  My kids have brought the card games to me so I can be a part.  I downloaded a word game on my cell phone. And I even play the video games with my son, something I’d of never taken the time to do before.
  • Research.  I’ve not given you any websites. You can find these things on Google or Pinterest I have no doubt.  But, if that bores you, pick a topic and research away.  I have a friend that knows all there is to know about “The Black Plague.”  She uses her time research and is now an expert on the subject.
  • Be an encourager.  This one can be hard.  It’s so hard to be joyful when you feel like poo.  Many of us are members of social media support groups.  Many times people need a personal encouraging word.  I feel like this one can be hard for me and I’m not overly social- despite having a public blog.

There are always a few random warriors that prefer to clean house when they flare. I say more power to ya! Whatever you do to cope and keep your sanity…. I suggest you find brain food.  Things to stimulate your brain and knowledge.  You don’t have to give up and become a potato chip couch zombie. And when all else fails, turn on Netflix or Amazon Prime!

 “A merry heart doeth good like a medicine: but a broken spirit drieth the bones.” (Proverbs 17:22) KJV

P.S. I didn’t even mention diet.  That is a huge factor.  Post to come… maybe!

Keeping my head above the water,

~Lena

photo credit: marcoverch <a href=”http://www.flickr.com/photos/149561324@N03/25024670428″>Pflaster auf weißem Tisch und im Behälter</a> via <a href=”http://photopin.com”>photopin</a&gt; <a href=”https://creativecommons.org/licenses/by/2.0/”>(license)</a&gt;
photo credit: Theo Crazzolara <a href=”http://www.flickr.com/photos/141324643@N05/25007297257″>Let the fantasy play with your heart</a> via <a href=”http://photopin.com”>photopin</a&gt; <a href=”https://creativecommons.org/licenses/by/2.0/”>(license)</a&gt;
photo credit: vandentroost <a href=”http://www.flickr.com/photos/115471694@N04/36404305214″>old books</a> via <a href=”http://photopin.com”>photopin</a&gt; <a href=”https://creativecommons.org/licenses/by-nc-nd/2.0/”>(license)</a&gt;
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